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Living Beyond Cancer

Coping with long term survivorship challenges.

MA 2024
Keywords
Survivorship, Cancer, Art, Agency
Overview

Our project focuses on supporting cancer survivors in reclaiming their lost sense of agency through creative expression. By enabling survivors to create and share their own artwork in hospitals, we provide a platform for them to tell their stories and connect with others undergoing similar experiences. This approach not only aids in personal healing but also offers a valuable metric for charities to measure the impact of these interactions. Our goal is to shift the focus of survivorship care towards empowering individuals to regain control over their lives.

Collaboration

Our collaboration with Big C Cancer Charity has been central to the success of our project. Big C has provided crucial support by facilitating workshops where cancer survivors could engage in art-based activities. These workshops allowed us to gather insights and validate our approach by directly involving the survivors in creating artwork that would be displayed in hospitals. The partnership has enabled us to connect with survivors, gather valuable feedback, and ensure that our solution aligns with the needs of both the survivors and the healthcare environment.

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Context

Cancer survival rates in the UK have significantly improved, with an expected 4 million people living with or after cancer by 2030. However, the transition from patient to survivor presents numerous challenges. Survivorship often results in a loss of agency, where individuals feel stripped of their ability to work, care for others, or pursue personal goals. Existing services are often momentary and fail to provide lasting empowerment, leaving survivors in need of more enabling support systems.

Insights and Challenges

Through our research, we identified key insights that shaped our approach.


Insight 1

Cancer survivors face a profound loss of agency, which is central to their challenges.


Insight 2

The need for enabling services rather than temporary support from charities.


Insight 3

While art in hospitals can reduce anxiety and create positive environments, there is no established metric to measure its impact.


Insight 4

Acts of care and giving back play a therapeutic role for survivors, helping them find purpose and alleviating survivor's guilt.

How might we enable cancer survivors to reclaim their lost agency to care?

Solution

Our solution empowers cancer survivors by providing them with opportunities to create and display their own artwork in hospitals. This not only allows survivors to share their stories but also offers patients on their cancer journey relatable and authentic experiences. The art created by survivors serves as a bridge, fostering trust and deep connections between patients and survivors. By challenging traditional notions of who can be an artist, we aim to empower survivors in a new, meaningful way. Additionally, we introduce methods to track and measure the impact of these interactions, providing charities with valuable metrics to demonstrate the effectiveness of their initiatives.

Ethics and Design Methods

Ethical Considerations

Recognizing the vulnerability of cancer survivors, we crafted a team manifesto to guide our interactions, ensuring that all engagement was ethical and non-distressing. This manifesto served as a constant reminder to prioritize the well-being of participants throughout our research process.

Art-Based Methodologies

We adopted art-based research methodologies designed to be non-extractive and empowering for participants. These methods allowed survivors to express themselves freely, providing a safe space to share their experiences without the pressure of achieving perfection.

Research Approach

Our research was divided into secondary and primary phases. Initially, we conducted secondary research through academic literature, podcasts, and social media. This was followed by primary research, where we engaged directly with survivors through an art-based collage workshop. This method was chosen for its reflective nature, mirroring the complex and layered experience of survivorship.

SPECIAL
THANKS

We would like to extend our heartfelt thanks to everyone who supported us throughout this project. Special thanks to our tutors at RCA, especially Richard, for his invaluable guidance and mentorship. We are also grateful to our project partner, Big C Cancer Charity, for their collaboration and to all the participants who shared their experiences with us. We are also immensely thankful to Benjamin Hartley, Gosia, Dr. Elise Hodson, Louise Andrews, Scott Ransley and Dr. Vidya Sarangapani for their insights and contributions.

Team
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